Wednesday, August 9, 2017

Coordinating Private Aides For LTC residents With Dementia

Assisted-living facilities (ALFs) in New York (NY) can hold one or a combination of different types of licensure and certification: basic, enhanced, and/or special needs. According to NY Health Department regulations, ALFs with enhanced certification can provide “aging in place by admitting and retaining residents who desire to continue to age in place…able to provide skilled nursing services and to accommodate residents who exceed the retention standards” that are found in ALFs with only basic certification.
ALFs with a “special needs” certification are authorized “to provide services to residents with special needs, most commonly Alzheimer’s disease [AD], dementia, or cognitive impairment. In addition, the assisted living operator may choose to be dually certified to provide enhanced and special needs services, thereby further allowing residents to age in place.”But there will be times when residents with AD may require additional care, even in ALFs with both enhanced and special needs certification.
My late wife, Clare, was a resident with AD in a dually certified ALF in NY. However, at a certain point, the ALF required me to hire personal “home health” aides to be with her in order to remain there to age in place. (Even if care is given in ALFs and not in private homes, these aides are still referred to as home health aides.) According to NY regulations, “Personal care tasks that exceed the approved scope of tasks in which an assisted living resident aide is trained must be performed by trained home health aides.
Regulations governing enhanced ALFs also state: “A resident shall be permitted to…continue to reside and age in place…provided the operator, the resident’s physician, and, if applicable, the resident’s licensed or certified home care agency agree that the additional needs of the resident can be safely and appropriately met at the residence.”
According to the National Center for Assisted Living, ALFs are responsible for providing “coordination of services by outside health care providers.” But what exactly does this responsibility imply? What is meant by “coordination,” and what procedures should ALFs implement to provide this coordination?
Below are some experiences I had when my wife was a resident in an ALF, demonstrating the many instances where care coordination in long-term care facilities needs improvement.
  • When my wife needed services provided by an outside health care provider, the ALF chose the agency. As the caregiver, I had no input. After observing and reporting negligent care and/or shoddy work habits of outside aides assigned to care for Clare, the AD unit supervisor told me I should contact the care provider. To their credit, new aides were assigned each time I complained to the care provider. But why didn’t the facility complain to the outside care agency to ensure that Clare was receiving proper care?
  • My daughter and I spent time with each new agency aide to provide specific instructions for my wife’s care regarding food, clothing, personal hygiene, etc. But too often a different aide would be assigned the following day, an aide who had no knowledge of the specific instructions for my wife. When I would find out, my daughter and I would meet with the new aide, but why didn’t the AD unit supervisor communicate those specific instructions to new aides initially?
  • I visited my wife on a daily basis, and several times I noticed aides arriving late or leaving early.  But no one at the facility ever informed me of when an aide arrived late or left early. Shouldn’t outside aide arrival and departure time be monitored by facilities? 
  • When I received statements from the outside care provider detailing charges already billed to my credit card, I sometimes noticed billing for hours when the aide was not there, or overtime charges without advance notice that overtime rates would apply. But I could never be sure that aides worked for all hours billed when I was not personally there to verify such hours, and again, no one from the facility had recorded their presence. Shouldn’t outside care agencies submit their statements first to facilities for verification?
  • It would be very helpful for already stressed caregivers if care facilities took more responsibility for supervising and coordinating personal aides hired by caregivers to allow their loved ones to age in place.
Dr Vann is a frequent writer in caregiver magazines, medical journals, and in major newspapers. After his wife, Clare, was diagnosed with early onset Alzheimer’s disease, Dr Vann made it a point to increase public awareness of Alzheimer’s and to help fellow caregivers. You can read his other pieces at If you would like Dr Vann to respond to questions or comments about this article, please email him directly at
© Copyright 20
Published in Annals of Long-Term Care, August 7, 2017.  Access online only at:

Thursday, August 3, 2017

Personal Blog #2 ... The Truth About Alzheimer’s Disease Through the Eyes of a Home Caregiver

Although I had no editorial control over what was printed, Angels Homecare, a Chicago based organization, invited me to share some thoughts about caregiving for a forthcoming online article. That organization published its online piece today, 8/3/17, giving the perspectives of four Alzheimer's caregivers that readers may find interesting.  I am one of the four caregivers cited.

There is no way I can reproduce the pictures and graphics accompanying the online article to do it justice, but readers may go to their website page if interested in reading the complete article.  Cut/copy and paste this address into your browser: